https://saveoursons.org.au/blogs/news/alex-scollard-memorial-phd-scholarship 2021-02-10T13:24:43+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1610486216_Picture1_4f6b6804-69b0-4e08-982c-f756eb169b79.jpg?v=1610486222 Alex Scollard Memorial PHD Scholarship https://saveoursons.org.au/blogs/news/save-our-sons-duchenne-foundation-nurses-program-the-royal-children-s-hospital-in-melbourne 2021-02-10T13:23:52+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Capture5_03c0c893-06dd-468a-9d21-198ee91c0ec2.png?v=1612409636 Save Our Sons Duchenne Foundation Nurses Program – The Royal Children’s Hospital in Melbourne https://saveoursons.org.au/blogs/news/sosdf-carriers-information-session 2021-02-10T11:01:57+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Copy-of-Copy-of-Copy-of-Untitled.jpg?v=1612915317 SOSDF Carriers Information Session https://saveoursons.org.au/blogs/news/sosdf-ndis-information-session 2021-02-10T10:52:32+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/COPYOF1.png?v=1612914424 SOSDF NDIS Information Session https://saveoursons.org.au/blogs/news/have-your-say-on-ndis 2021-02-10T10:51:00+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Have-Your-Say-On-NDIS.png?v=1612913952 Have Your Say On NDIS https://saveoursons.org.au/blogs/news/commonwealth-inquiry-into-independent-assessment-for-ndis 2021-03-03T08:07:50+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Commonwealth-inquiry-into-INDEPENDENT-ASSESSMENT-FOR-NDIS.png?v=1612913748 Commonwealth Inquiry into Independent Assessment For NDIS https://saveoursons.org.au/blogs/news/remote-health 2021-03-30T11:21:11+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1617063670_1555-2_f6f591e9-b476-4160-b64e-3516d1a9db8c.png?v=1617063671 NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services. https://saveoursons.org.au/blogs/news/neuromuscular-funding 2021-02-10T12:54:55+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Rocio-Medical-Hospital.png?v=1612922095 Funding towards the position of Neuromuscular Clinical Trials Staff Specialist Neurologist, held by Dr. Ian Woodcock. https://saveoursons.org.au/blogs/news/catabasis-pharma-duchenne 2021-02-10T13:06:58+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1612922812_Catabasis-Pharmaceuticals-Announces-Top-Line-Results-for-the-Phase-3-PolarisDMD-Trial-of-Edasalonexent-in-Duchenne-Muscular-Dystrophy_525cbf7e-9e99-47dd-845e-da46b84b9904.png?v=1612922818 Catabasis Pharmaceuticals Announces Top-Line Results for the Phase 3 PolarisDMD Trial of Edasalonexent in Duchenne Muscular Dystrophy https://saveoursons.org.au/blogs/news/new-drugs-and-novel 2021-03-30T11:22:45+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1612922802_Commonwealth-Parliamentary-Inquiry-New-Drugs-and-Novel-Medical-Technologies_6caf2624-c1f3-49da-8350-4515ab8ea826.png?v=1617063765 Commonwealth Parliamentary Inquiry New Drugs and Novel Medical Technologies https://saveoursons.org.au/blogs/news/guide-to-duchenne 2021-04-28T15:31:40+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1619587892_1619587142_Untitled-design-13_bcd58a9e-cfb7-428b-91c8-2b99aed5719f.png?v=1619587900 Duchenne & Becker muscular dystrophy, a guide for NDIS Planning https://saveoursons.org.au/blogs/news/sosdf-nurses 2021-02-10T13:22:26+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Perth-Children_s-Hospital-Exclusive-Neuromuscular-Nurse.png?v=1612923746 SOSDF Nurses Program Perth Children’s Hospital - Exclusive Neuromuscular Nurse https://saveoursons.org.au/blogs/news/stories 2026-09-22T12:43:52+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/WE-NEED-YOUR-STORIES_21eef02a-6bb5-46fd-8bcf-6be4bb2234d5.png?v=1790045032 We need your stories - Parliamentary Inquiry into new drugs and novel medical technologies https://saveoursons.org.au/blogs/news/education-ndis 2021-02-10T16:35:24+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1612934799_Education-1_c3ab841d-6ea4-4eb6-9d5e-ac0573b94b94.png?v=1612934802 Save Our Sons Duchenne Foundation Submission to the Federal Department of Education, Skills and Employment. 2020 Review of the Disability Standards for Education 2020 https://saveoursons.org.au/blogs/news/virtual-townhall 2021-03-30T08:17:01+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1613442368_Social-Image.png?v=1613442514 NDIS Virtual Town Hall https://saveoursons.org.au/blogs/news/eqol 2021-02-17T14:16:03+11:00 weekly https://saveoursons.org.au/blogs/advocacy/parent-project-muscular-dystrophy 2021-03-04T16:16:02+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1614834961_ppmd_002_32e71205-1ca4-4d98-bb18-f67b2fe36120.jpg?v=1614834962 Parent Project Muscular Dystrophy https://saveoursons.org.au/blogs/advocacy/commonwealth-inquiry-into-independent-assessment-for-ndis 2021-03-03T08:14:19+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/download_6.png?v=1614719659 Commonwealth Inquiry into Independent Assessment For NDIS https://saveoursons.org.au/blogs/advocacy/have-your-say-on-ndis 2021-03-03T08:20:11+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/download_7.png?v=1614719959 Have Your Say On NDIS https://saveoursons.org.au/blogs/media-releases/walk-4-duchenne-media-release 2021-03-29T19:45:22+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1616412218_W4D.png?v=1616443798 Walk 4 Duchenne Takes Its Message Directly to Parliament https://saveoursons.org.au/blogs/advocacy/ndis-virtual-town-hall 2021-03-30T09:15:53+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/34343.jpg?v=1617056153 NDIS Virtual Town Hall https://saveoursons.org.au/blogs/advocacy/ndis-consultation-the-work-continues 2021-03-30T11:25:17+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/NDIS_cONSULTATIONof_It.png?v=1617063917 NDIS Consultation - the work continues: https://saveoursons.org.au/blogs/advocacy/introductory-video-save-our-sons-duchenne-foundation-keynote-report-into-duchenne-and-becker-in-australia 2021-03-30T11:15:23+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1617063321_434_fe4ecfbe-4a8b-4c75-9871-1f162131e9ce.jpg?v=1617063323 Introductory Video: Save Our Sons Duchenne Foundation Keynote Report into Duchenne and Becker in Australia https://saveoursons.org.au/blogs/advocacy/commonwealth-parliamentary-inquiry-new-drugs-and-novel-medical-technologies 2021-03-30T11:36:21+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1612922802_Commonwealth-Parliamentary-Inquiry-New-Drugs-and-Novel-Medical-Technologies_520x500_3a91a999-68aa-439c-96dc-148ab7d57641.png?v=1617064485 Commonwealth Parliamentary Inquiry New Drugs and Novel Medical Technologies https://saveoursons.org.au/blogs/advocacy/nsw-parliamentary-inquiry-rural-regional-and-remote-health-and-hospital-services1 2021-03-30T11:35:58+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1617063670_1555-2_520x500_a9958304-55ba-49d0-b67d-eefea5c7f4cc.png?v=1617064516 NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services. https://saveoursons.org.au/blogs/news/sarepta-therapeutics-srp-5051 2021-05-03T11:58:42+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Sarepta_Therapeutics_to_Share_Clinical_Update_for_30_mgkg_arm_of_MOMENTUM_Study_for_SRP-5051.png?v=1620007122 Sarepta Therapeutics to Share Clinical Update for 30 mg/kg arm of MOMENTUM Study for SRP-5051 https://saveoursons.org.au/blogs/news/sarepta-therapeutics-srp-5051-positive-results 2021-05-04T10:00:09+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Sarepta_Therapeutics_to_Share_Clinical_Update_for_30_mgkg_arm_of_MOMENTUM_Study_for_SRP-5051_1.png?v=1620086409 Sarepta Therapeutics Reports Positive Clinical Results from Phase 2 MOMENTUM Study of SRP-5051 in Patients with Duchenne Muscular Dystrophy Amenable to Skipping Exon 51 https://saveoursons.org.au/blogs/news/importance-of-anmdr 2021-06-29T18:09:02+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1624954093_1624954078_1624954038_1624954030_1624954008_1624953992_1624953916_1624953863_1624953836_1624953807_SOSDF_Registry_Zoom_Session_-_Robin_Forbes_28_June_2021_7460095e-175d-4ac_e6508af6-c467-4ef9-8014-7bc853d56d6a.png?v=1624954142 Are you on the Australian Neuromuscular Disease Registry (ANMDR)? https://saveoursons.org.au/blogs/news/sosdf-qld-submission-social-isolation-loneliness 2021-10-07T11:07:23+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1629349377_qld_61ec50ae-3baf-4e47-bd04-fbe74ef15e77.png?v=1629349379 SOSDF to capitalise on the Queensland Parliamentary Inquiry into Social Isolation and Loneliness https://saveoursons.org.au/blogs/advocacy/sosdf-to-capitalise-on-the-queensland-parliamentary-inquiry-into-social-isolation-and-loneliness 2021-10-07T11:05:33+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/qld.jpg?v=1633564311 SOSDF to capitalise on the Queensland Parliamentary Inquiry into Social Isolation and Loneliness https://saveoursons.org.au/blogs/advocacy/ndis-legislative-changes 2021-10-07T11:03:14+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/NDIS_Legislative_Changes_are_Coming_002.png?v=1633564994 NDIS Legislative Changes https://saveoursons.org.au/blogs/advocacy/victorian-taxi-scheme 2021-10-07T11:03:28+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/VIC_002.png?v=1633565008 Victorian Taxi Scheme (MPTP) https://saveoursons.org.au/blogs/news/gp-submission 2021-10-28T15:44:03+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1635396241_1635135508_1635135503_1635135476_Post_2_002_255325e6-74d7-4b75-8323-05eb8c6c0c78.png?v=1635396243 GP Submission https://saveoursons.org.au/blogs/advocacy/gp-submission 2021-10-28T15:44:46+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1635396284_1635135434_Post_2_002_1eb73ac3-d7ee-455c-9f8e-2c6735ac594c.png?v=1635396286 GP Submission https://saveoursons.org.au/blogs/news/new-frontiers-launched 2022-01-24T15:27:17+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/1642997852_1642996301_1642996065_1642995590_1642995555_Senate_Inquiry_into_the_Provision_of_GP_and_other_primary_health_services_in_outer_metropolitan_regional_and_remote_Australia__0.png?v=1642997854 “New Frontiers” Launched https://saveoursons.org.au/blogs/advocacy/new-frontiers-launched-2 2022-01-24T15:30:02+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Senate_Inquiry_into_the_Provision_of_GP_and_other_primary_health_services_in_outer_metropolitan_regional_and_remote_Australia__002.png?v=1642998551 “New Frontiers” Launched https://saveoursons.org.au/blogs/news/pfizer-gene-therapy-clinical-trials-commence-in-australia 2022-09-06T14:37:14+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Register.png?v=1662439034 Pfizer gene therapy clinical trials commence in Australia https://saveoursons.org.au/blogs/news/pfizer-phase-2-daylight-study-update 2024-05-08T16:09:37+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/update-sos.jpg?v=1715148577 Pfizer Phase 2 Daylight Study Update https://saveoursons.org.au/blogs/news/update-to-urgent-product-defect-alert-tga-ref-rc-2024-rn-00257-1-philips-ref-2023-cc-src-039 2024-06-04T14:08:48+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Update_to_Urgent_Product_Defect_Alert_TGA_Ref_RC-2024-RN-00257-1-_Philips_Ref_2023-CC-SRC-039.png?v=1717474127 Update to Urgent Product Defect Alert TGA Ref RC-2024-RN-00257-1- Philips Ref 2023-CC-SRC-039 https://saveoursons.org.au/blogs/news/final-letter-for-phillips-recall 2024-07-30T18:30:33+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/ew.jpg?v=1722328233 Final Letter for Philips Recall https://saveoursons.org.au/blogs/news/no-life-insurance-discrimination-for-those-with-a-genetic-condition 2024-09-11T13:04:35+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/mediaa.jpg?v=1726023875 No Life Insurance Discrimination For Those With a Genetic Condition https://saveoursons.org.au/blogs/news/update-to-the-duchenne-community-from-percheron-therapeutics-on-progress-with-avicursen 2024-12-19T14:56:06+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Untitled-4.jpg?v=1734580566 Update to the Duchenne Community from Percheron Therapeutics on Progress with Avicursen https://saveoursons.org.au/blogs/news/edgewise-therapeutics-topline-results-from-phase-2-becker-canyon-trial-of-sevasemten 2024-12-19T15:10:54+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/edgewise.jpg?v=1734581454 Edgewise Therapeutics Topline results from phase 2 Becker Canyon trial of Sevasemten https://saveoursons.org.au/blogs/news/dyne-therapeutics-announces-new-long-term-clinical-data 2025-03-18T09:11:37+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/news1.webp?v=1742249497 Dyne Therapeutics Announces New Long-Term Clinical Data https://saveoursons.org.au/blogs/news/sarepta-therapeutics-shares-safety-update-on-elevidys 2025-03-19T13:52:59+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/sswww.jpg?v=1742352779 Sarepta Therapeutics Shares Safety Update on ELEVIDYS https://saveoursons.org.au/blogs/news/duchenne-care-conference-2025 2025-04-28T16:11:06+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/dcc25.webp?v=1745820666 Duchenne Care Conference 2025 https://saveoursons.org.au/blogs/news/wave-life-sciences-shares-48-week-data-from-forward-53-trial-of-wve-n531-in-duchenne-muscular-dystrophy 2025-05-10T23:31:25+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/wavee_16670f41-49d4-4a02-b5b6-202981932583.jpg?v=1746883885 Wave Life Sciences Shares 48-Week Data from FORWARD-53 Trial of WVE-N531 in Duchenne Muscular Dystrophy https://saveoursons.org.au/blogs/news/sarepta-provides-safety-update-for-elevidys-and-initiates-steps-to-strengthen-safety-in-non-ambulatory-individuals-with-duchenne 2025-06-22T23:53:34+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/sswww_cef9a6ba-5469-4892-a04e-f732341d335a.jpg?v=1750600414 Sarepta Provides Safety Update for ELEVIDYS and Initiates Steps to Strengthen Safety in Non-Ambulatory Individuals with Duchenne https://saveoursons.org.au/blogs/news/edgewise-therapeutics-reports-positive-results-on-sevasemten-program-for-becker-and-duchenne-muscular-dystrophies 2025-06-27T16:03:11+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/r4r4r4.webp?v=1751004191 Edgewise Therapeutics Reports Positive Results on Sevasemten Program for Becker and Duchenne Muscular Dystrophies https://saveoursons.org.au/blogs/news/sarepta-therapeutics-announces-voluntary-pause-of-elevidys-shipments-in-the-u-s 2025-07-25T17:22:29+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/y1.webp?v=1753428149 Sarepta Therapeutics Announces Voluntary Pause of ELEVIDYS Shipments in the U.S. https://saveoursons.org.au/blogs/news/genetic-webinar-series 2025-09-08T17:08:02+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/tre.webp?v=1757315282 Genetic Webinar Series https://saveoursons.org.au/blogs/news/satellos-announces-first-adult-patient-dosed-in-lt-001-an-open-label-long-term-follow-up-study-of-sat3247-in-duchenne-muscular-dystrophy 2025-11-03T16:29:06+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/st.webp?v=1762147746 Satellos Announces First Adult Patient Dosed in LT-001, an Open-Label, Long-Term Follow-Up Study of SAT3247 in Duchenne Muscular Dystrophy https://saveoursons.org.au/blogs/news/muscular-dystrophy-australia-inclusive-classrooms-understanding-amp-supporting-students-with-neuromuscular-disabilities 2025-11-04T18:49:38+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/dw.webp?v=1762242578 Muscular Dystrophy Australia - Inclusive Classrooms https://saveoursons.org.au/blogs/news/ptc-therapeutics-provides-regulatory-fda-update-on-translarna%E2%84%A2 2026-02-26T23:05:52+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/sos.webp?v=1772107552 PTC Therapeutics Provides Regulatory (FDA) Update on Translarna™ https://saveoursons.org.au/blogs/news/save-our-sons-brings-duchenne-communitys-voice-to-nsw-parliament 2026-09-23T21:41:29+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/sos_33d5a55f-c43f-41c2-bc5c-f1dfab5fdaf3.jpg?v=1790163689 Save Our Sons brings Duchenne community’s voice to NSW Parliament https://saveoursons.org.au/blogs/news/save-our-sons-sets-sights-on-future-of-duchenne-care 2026-10-01T22:52:58+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/g_ece109c7-0c38-4a36-b868-eba14cd9e250.jpg?v=1790859178 Save Our Sons sets sights on future of Duchenne care https://saveoursons.org.au/blogs/news/world-duchenne-awareness-day-save-our-sons-joins-global-call-for-better-access 2026-10-01T22:13:31+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/wd_7c7e845f-e846-4a8d-af20-18ff97b9a66f.jpg?v=1790856811 World Duchenne Awareness Day: Save Our Sons joins global call for better access https://saveoursons.org.au/blogs/news/remembering-gary-angry-anderson 2026-10-01T22:52:41+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/Remembering_Gary_Angry_Anderson.jpg?v=1790859161 Remembering Gary “Angry” Anderson https://saveoursons.org.au/blogs/news/new-resources-support-people-living-with-rare-disease-and-disability 2026-10-01T22:09:58+10:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/New_resources_support_people_living_with_rare_disease_and_disability_d90ef0bc-0f11-4764-9057-e336afe73d8f.jpg?v=1790856598 New resources support people living with rare disease and disability https://saveoursons.org.au/blogs/news/save-our-sons-connects-with-global-neuromuscular-community-in-japan 2026-10-08T14:33:44+11:00 weekly https://cdn.shopify.com/s/files/1/0506/8367/4813/articles/s-1.jpg?v=1791430371 Save Our Sons connects with global neuromuscular community in Japan