Are you on the Australian Neuromuscular Disease Registry (ANMDR)?

With an increasing number of pharmaceutical companies interested to run clinical trials in Australia, it is critical that we have as many boys and men on ANMDR as possible.

Robin Forbes, genetic counsellor from Royal Melbourne Children’s hospital, manages the ANMDR on behalf of our community in Australia. She recently provided a webinar in collaboration with Save Our Sons Duchenne Foundation on the importance of being part of this registry. In the webinar, she outlines the many positive implications arising for the Duchenne and Becker community as a consequence of a more comprehensive ANMDR.

Save Our Sons Duchenne Foundation encourages you to view the webinar below: