Resources
Due to the current NSW Lockdown and COVID restrictions, there will be delays in the delivery of our resources. The Save Our Sons team is planning on posting these resources out as soon as it is safe to do so. We apologise for any inconvenience caused by this delay.
Dan and DMD
Talking to your child about having Duchenne muscular dystrophy, what it is and how it can impact them can be a stressful and overwhelming time for parents and carers.
Dan and DMD, will help parents and carers as they prepare to talk to their children about Duchenne. It is also a great resource to help teachers explain Duchenne to the child’s peers as well as friends.
Read More
Dan is an upbeat kid who loves to have a blast and like some young boys around the world, he has Duchenne muscular dystrophy. In this beautifully illustrated and thoughtfully worded children's book, Dan introduces children to Duchenne sharing a look into his life and his feelings.
Thanks to our friends at Jett Foundation, we are now able to provide this valuable resource to our community free of charge.
Order your copy today!
Mckell Report
Save Our Sons commissioned the McKell Institute and Equity Economics to produce a keynote Report highlighting the main issues and challenges facing families of children and adults with Duchenne and Becker Muscular Dystrophy in Australia as they wait for a cure.
The Report helps to better understand how Duchenne and Becker impacts families, how we can ensure that new treatments benefit Australian’s sooner, and to better support those with the conditions today.
Newly Diagnosed Pack
This booklet is produced by Save Our Sons
Duchenne Foundation; the National Australian not for-profit organisation supporting boys, young men, rare girls and their families living with Duchenne and
Becker muscular dystrophy.
The information contained in this booklet is an overview of Duchenne muscular dystrophy, and is designed to guide you through the early days of diagnosis - the start of your family’s journey.
Teachers’ Resource Pack
Starting school, transitioning into high school and graduating to further education are all changes that children, regardless of whether they have a disability or not, experience. These are ‘normal’ milestones that are celebrated but also approached with apprehension for both children and their parents. Save Our Sons has developed this educational
resource to help teachers, educational assistants and other multi-disciplinary team members to better.
A Guide for NDIS Planning
Save Our Sons Duchenne Foundation commissioned Marguerite Botha, an experienced NDIS Support Coordinator, to write a National Disability Insurance Scheme (NDIS) Information Guide specifically catered to families and individuals living with Duchenne (DMD) and Becker (BMD) Muscular Dystrophies.
Jons Journey
Inside the Body
This first comic has Jon and Captain Jack going on a special adventure, exploring the inside of Jon’s muscle cells. The journey also explores in very simple terms how genes contribute to DMD. This is a great first book explaining why someone has DMD
Mission Duchenne - Don in the Spaceship
Jon and Captain Jack travel into the future to look at how DMD will impact Jon in the future, looking at both the physical and psychological impacts of the condition.
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Mission Duchenne - A Time of Change
Jon and Captain Jack explore puberty and DMD as well as the extra challenges faced in the early teenage years.
Mission Duchenne - The New Commander
The last adventure takes Jon and Captain Jack on a quest to explore the aspects of transition from a child to an adult. The main focus of this book is on Jon taking charge of his care with the support of his care team and support network.