Resources  

Dan and DMD

Talking to your child about having Duchenne muscular dystrophy, what it is and how it can impact them can be a stressful and overwhelming time for parents and carers.


Dan and DMD, will help parents and carers as they prepare to talk to their children about Duchenne. It is also a great resource to help teachers explain Duchenne to the child’s peers as well as friends.


Read More 

Dan is an upbeat kid who loves to have a blast and like some young boys around the world, he has Duchenne muscular dystrophy. In this beautifully illustrated and thoughtfully worded children's book, Dan introduces children to Duchenne sharing a look into his life and his feelings.


Thanks to our friends at Jett Foundation, we are now able to provide this valuable resource to our community free of charge.


Order your copy today!


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Mckell Report 

Save Our Sons commissioned the McKell Institute and Equity Economics to produce a keynote Report highlighting the main issues and challenges facing families of children and adults with Duchenne and Becker Muscular Dystrophy in Australia as they wait for a cure.


The Report helps to better understand how Duchenne and Becker impacts families, how we can ensure that new treatments benefit Australian’s sooner, and to better support those with the conditions today.


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Emergency Care Card

This simple card for your wallet or purse will help you talk to doctors and nurses about the special precautions required if a child with Duchenne suddenly becomes sick or injured.


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Newly Diagnosed Pack 

This booklet is produced by Save Our Sons

Duchenne Foundation; the National Australian not for-profit organisation supporting boys, young men, rare girls and their families living with Duchenne and

Becker muscular dystrophy.

The information contained in this booklet is an overview of Duchenne muscular dystrophy, and is designed to guide you through the early days of diagnosis - the start of your family’s journey.


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Teachers’ Resource Pack 

Starting school, transitioning into high school and graduating to further education are all changes that children, regardless of whether they have a disability or not, experience. These are ‘normal’ milestones that are celebrated but also approached with apprehension for both children and their parents. Save Our Sons has developed this educational

resource to help teachers, educational assistants and other multi-disciplinary team members to better. 


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A Guide for NDIS Planning 

Save Our Sons Duchenne Foundation commissioned Marguerite Botha, an experienced NDIS Support Coordinator, to write a National Disability Insurance Scheme (NDIS) Information Guide specifically catered to families and individuals living with Duchenne (DMD) and Becker (BMD) Muscular Dystrophies.


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