ABOUT SAVE OUR SONS DUCHENNE FOUNDATION
Save Our Sons Duchenne Foundation was founded in 2008 and is the peak body for those living with Duchenne and Becker muscular dystrophy (around 1,000 young people) across Australia.
Our vision is to find a cure for Duchenne and Becker muscular dystrophy whilst actively working to ensure enhanced quality of life (including quality of educational opportunities) for those young people and their families affected by this condition.
Advocacy and community engagement work are crucial to achieving this vision along with ongoing fundraising designed to raise funds for essential research, service delivery and the provision of critical resources to the Duchenne and Becker community.
Along with the funding of a critical nurses program in some of our major children’s hospitals across Australia, Save Our Sons Duchenne Foundation also delivers a telehealth nursing service, scholarship programs, critical equipment and resources and a number of initiatives and programs such as music therapy which are designed to enhance the quality of life, skills and social development of young people suffering from Duchenne and Becker.
To find a cure for Duchenne and Becker muscular dystrophy
Integrity, Empowerment, Innovation and Compassion.
Enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the conditions.