About Save Our Sons Duchenne Foundation    

  • About Save Our Sons Duchenne                           Foundation                    
  • Save Our Sons Five – 
            Year Strategy 2020 – 2025           
  • KEYNOTE REPORT INTO DUCHENNE & BECKER MUSCULAR DYSTROPHY IN AUSTRALIA
  • Our Scientific Advisory Committee     

ABOUT SAVE OUR SONS DUCHENNE FOUNDATION 


Save Our Sons Duchenne Foundation was founded in 2008 and is the peak body for those living with Duchenne and Becker muscular dystrophy (around 1,000 young people) across Australia.


Our vision is to find a cure for Duchenne and Becker muscular dystrophy whilst actively working to ensure enhanced quality of life (including quality of educational opportunities) for those young people and their families affected by this condition.


Advocacy and community engagement work are crucial to achieving this vision along with ongoing fundraising designed to raise funds for essential research, service delivery and the provision of critical resources to the Duchenne and Becker community.


Along with the funding of a critical nurses program in some of our major children’s hospitals across Australia, Save Our Sons Duchenne Foundation also delivers a telehealth nursing service, scholarship programs, critical equipment and resources and a number of initiatives and programs such as music therapy which are designed to enhance the quality of life, skills and social development of young people suffering from Duchenne and Becker.


Our Vision

To find a cure for Duchenne and Becker muscular dystrophy


Our Values

Integrity, Empowerment, Innovation and Compassion.


Our Purpose

Enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the conditions.


SAVE OUR SONS FIVE – YEAR STRATEGY 2020 – 2025


 Please Click to view Save Our Sons Five - Year Strategy 2020 - 2025 




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Keynote Report into Duchenne & Becker muscular dystrophy in Australia 


 Please Click to view Keynote Report into Duchenne & Becker muscular dystrophy in Australia 


 VIEW PDF 



Our Scientific Advisory Committee 


Save Our Sons Duchenne Foundation have established a world-class Scientific Advisory Committee to advise the Board on funding for research and clinical trials and arrangements and decisions pertaining to key health-related policy.


Committee members were selected on the basis of academic or medical excellence, history of breakthroughs and their commitment to accelerating treatments to people with Duchenne and Becker muscular dystrophy.


The strength of the Committee demonstrates the Foundation’s commitment to responsible spending and the priority that we place on funding the best research with the best chance of success.


Enhancing governance through establishing the Scientific Advisory Committee will ensure the greatest impact of every dollar, resource and effort expended in securing a cure for Duchenne and Becker muscular dystrophy and will lead the organisation closer to achieving sector best practice in this regard and be of the greatest benefit to the Duchenne and Becker community in Australia.


Prof. Dr. Annemieke Aartsma-Rus

Professor Dominic (Nic) Wells

Professor Miranda Grounds

Brenda Wong, MD

Professor Monique Ryan