We're excited to share the draft agenda for Australia's very first Becker Education & Engagement Day (BEED), taking place on 23 October in Melbourne — and we'd love to hear your thoughts and feedback.
This important event is proudly hosted by Save Our Sons Duchenne Foundation and has been developed specifically for the Becker community. As we finalise the program, we want to ensure the day reflects the needs, interests and experiences of those living with Becker muscular dystrophy, their families and the wider community.
All about BMD: brief overview of natural history, MD approaches to care, genetics, family planning
Cardiac care
Physiotherapy considerations, muscle and exercise / supplementation
Current landscape in Australia & NZ
International natural history studies & clinical trials
Topics
Are there any key topics or areas you feel we have missed that you would like to learn more about?
Share feedbackSpeakers
Is there a speaker, clinician, researcher or community member who has inspired you and who you would love to see included?
Share feedbackSchedule
Does the overall schedule feel right — a full day of education, connection and opportunities to meet others, followed by a social event in the evening?
Share feedbackWe're also looking for a community member who would like to help shape this event — either by joining the planning committee or participating in a lived experience panel during the day. If this is something you would be interested in, we would love to hear from you.
Share Your FeedbackAs this will be the first BEED event held in Australia, your feedback and ideas are incredibly valuable. Please share your thoughts with us over the next week so we can incorporate your input into the final program.
We look forward to bringing the Becker community together for this important and meaningful event. Thank you for your support.
Kind regards,
Save Our Sons Duchenne Foundation