1 September 2026

Save Our Sons sets sights on future of Duchenne care

More than 500 people gathered in Sydney to support people living with Duchenne and Becker muscular dystrophy at Save Our Sons Duchenne Foundation’s annual fundraising event.

Guests at the 2026 Save Our Sons Sydney Gala

Funds raised through the 2026 Gala will support three major initiatives announced to improve care and quality of life for people living with Duchenne.

The 2026 Sydney Gala, held in August, marked a new era for the Foundation with three major initiatives announced to improve care and quality of life for people living with Duchenne.

Among the key initiatives was a new Adult Nurse Program, which will work with hospitals across Australia to support people with Duchenne and their families as they transition from paediatric to adult healthcare.

Save Our Sons also announced the International Symposium 2.0, which will invite about 100 specialists from more than 15 countries to Toronto in June 2027 to work towards a globally recommended standard of adult Duchenne care.

The third initiative, Emilio’s Wellness Centre, will see Save Our Sons work with government and healthcare professionals to develop an accessible facility in Seven Hills offering services including psychology, physiotherapy, speech therapy and hydrotherapy.

A 3,000 square-metre site, donated by Seven Hills RSL, will house the new centre.

Highlights from the 2026 Save Our Sons Sydney Gala.

The annual Gala is Save Our Sons’ flagship fundraising event, bringing together families, supporters, healthcare professionals, researchers, community leaders and corporate partners to raise vital funds for people living with Duchenne and Becker muscular dystrophy.

Funds raised through the 2026 Gala will support the Adult Nurse Program, clinical trials, research, advocacy and awareness campaigns.

Save Our Sons Founder Elie Eid said the new initiatives reflect the future of Duchenne care.

“We are now able to focus on ensuring longer lives are matched by better care, greater access and improved quality of life for people living with Duchenne,” Mr Eid said.