Save Our Sons commissioned the McKell Institute and Equity Economics to produce a keynote Report highlighting the main issues and challenges facing families of children and adults with Duchenne and Becker Muscular Dystrophy in Australia as they wait for a cure.

The Report helps to better understand how Duchenne and Becker impacts families, how we can ensure that new treatments benefit Australian’s sooner, and to better support those with the conditions today.

This simple card for your wallet or purse will help you talk to doctors and nurses about the special precautions required if a child with Duchenne suddenly becomes sick or injured. It outlines key medical considerations in an easy-to-understand format, ensuring nothing important is overlooked. 

Designed to be accessible in moments of urgency, it provides quick, reliable guidance for effective communication with healthcare professionals. 

This booklet is produced by Save Our Sons Duchenne Foundation; the National Australian not for-profit organisation supporting boys, young men, rare girls and their families living with Duchenne and Becker muscular dystrophy.

The information contained in this booklet is an overview of Duchenne muscular dystrophy, and is designed to guide you through the early days of diagnosis - the start of your family’s journey.

Starting school, transitioning into high school and graduating to further education are all changes that children, regardless of whether they have a disability or not, experience.

These are ‘normal’ milestones that are celebrated but also approached with apprehension for both children and their parents. Save Our Sons has developed this educational resource to help teachers, educational assistants and other multi-disciplinary team members to better support the student.

Save Our Sons Duchenne Foundation commissioned Marguerite Botha, an experienced NDIS Support Coordinator, to write a National Disability Insurance Scheme (NDIS) Information Guide specifically catered to families and individuals living with Duchenne (DMD) and Becker (BMD) Muscular Dystrophies.

An introductory guide to Duchenne Muscular Dystrophy (DMD), with focus on learning and behavioural concerns.

Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD.

Based on genuine experiences of Ryan, this book delves into his personal story of coping with Duchenne Muscular Dystrophy (DMD). It highlights the positive influence of the unwavering love from his family and friends propelling him onward despite the challenges life presented. It encapsulates profound lessons on family, friendship, love, resilience, strength, and genuine character during physical adversity.

Recommended for readers aged 4 to 6 years.

This book is a delightful and vibrant read, making it not only enjoyable but also a perfect tool for raising awareness about Duchenne Muscular Dystrophy (DMD) in a simple and accessible way for boys with DMD and their parents. It would also make a useful tool in the classroom. It is truly an amazing read, highly recommended for boys facing DMD, as it beautifully illustrates a positive approach to living with the condition.

Recommended for readers aged 4 to 13 years.

This book is a must for any child navigating life with Duchenne Muscular Dystrophy (DMD) and their families. It perfectly guides the children in comprehending the implications of a Duchenne diagnosis and its connection to their daily experiences. The vibrant and colourful illustrations not only raise awareness about DMD but also present the information in a format that younger children can easily understand. It offers a positive perspective on living with DMD. 

Recommended for readers aged 4 to 13 years.

This book captures the essence of living with DMD — demonstrating that, despite the hurdles, one can still lead a fulfilling life. It's an inspiring narrative, urging boys grappling with DMD to read it, as it shows both the positive and challenging aspects of their experiences.

Recommended for readers aged 7 to 10 years.

The comic delves into the scientific aspects of understanding what sets Jon apart by delving into the intricacies of his body, specifically examining the leg muscles and the role of the protein Dystrophin, which significantly affects boys. The unique aspect of this comic lies in its ability to simplify complex scientific concepts, making it accessible for boys with Duchenne Muscular Dystrophy to grasp the inner workings of their bodies. While it does get into scientific details, it takes care to present the information in a way that might be a bit challenging for younger boys with DMD to fully comprehend.

Recommended for readers aged 12 and over.

This comic introduces Jon, a young boy grappling with increasing challenges that lead him to introspect about his life. As he confronts heightened fatigue and a desire to understand his evolving circumstances, Jon grapples with the reality of living with Duchenne Muscular Dystrophy (DMD). Despite his initial reluctance, Jon finds solace in using a wheelchair, alleviating his fatigue and acknowledging that this is his new normal. The storyline carries emotional weight, particularly as Jon navigates the discovery of Duchenne, unravelling its effects on his energy levels and leg muscles. 

Due to the heavy nature of Jon's journey in coming to terms with DMD.

Recommended for readers aged 12 and over.

The comic captures the experiences of a teenager with Duchenne Muscular Dystrophy (DMD), depicting the profound changes in his life during this transformative period influenced by DMD. It delves into the challenges of navigating both puberty and the impact of DMD, offering a genuine portrayal of the struggles associated with the condition. The depiction of testosterone injections authentically mirrors the reality of a young boy living with Duchenne, as these injections are a recurring necessity every three months to address hormonal deficiencies resulting from the use of steroids. Personally, I found a strong connection to this comic book.

Recommended for readers aged 12 and over.

Follow the journey of the young teenager Jon, who, upon discovering he has Duchenne, embarks on a process of truly comprehending the condition. This involves taking medication and coming to terms with the life changes that accompany being a boy with Duchenne. 

The comic explores the various disadvantages that may affect Jon's future career, highlighting that becoming a pilot may not be possible. It also emphasizes the possibility of alternative career paths, such as becoming a writer or referee. Jon reaches a point of genuine understanding and acceptance of his Duchenne diagnosis.

Recommended for readers aged 12 and over.