News

  • Pfizer gene therapy clinical trials commence in Australia

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    Pfizer gene therapy clinical trials commence in Australia! The first Australian boy has been screened as part of the Pfizer gene therapy clinica...

  • “New Frontiers” Launched

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    The long awaited Federal Parliamentary Inquiry report into Approval Process for New Drugs and Novel Technologies has now been released. The reco...

  • GP Submission

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    Save Our Sons Duchenne Foundation has just written a submission on behalf of our community to the Senate Standing Committee on Community Affairs...

  • SOSDF to capitalise on the Queensland Parliamentary Inquiry into Social Isolation and Loneliness

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    Save Our Sons Duchenne Foundation (SOSDF) thanks all Queensland families and young people who have participated in our recent consult...

  • Are you on the Australian Neuromuscular Disease Registry (ANMDR)?

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    Are you on the Australian Neuromuscular Disease Registry (ANMDR)? With an increasing number of pharmaceutical companies interested to run clinic...

  • Sarepta Therapeutics Reports Positive Clinical Results from Phase 2 MOMENTUM Study of SRP-5051 in Patients with Duchenne Muscular Dystrophy Amenable to Skipping Exon 51

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    Sarepta Therapeutics has shared an update about themulti-ascending dose clinical trial of SRP-5051 for patients with Duchennemuscular dystrophy...

  • Sarepta Therapeutics to Share Clinical Update for 30 mg/kg arm of MOMENTUM Study for SRP-5051

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    Sarepta Therapeutics has, last week, announced thatthey will be hosting a webcast and conference call to present resultsfrom the 30 mg/kg arm o...

  • Commonwealth Inquiry into Independent Assessment For NDIS

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    Dear members of the Duchenne and Becker community.   You may recall that just prior to Christmas we advised of a community consultation process...

  • Have Your Say On NDIS

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    You may be aware that the National Disability Insurance Scheme (NDIS) is currently undertaking a consultation process with NDIS participants an...

  • SOSDF NDIS Information Session

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    Yesterday, Save Our Sons Duchenne Foundation hosted an NDIS Information Session. The aim of the session was for families to become familiar wi...

  • SOSDF Carriers Information Session

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    Today, Save Our Sons Duchenne Foundation hosted a Carriers Information Session. The aim of the session was to provide an overview and gain a b...

  • NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services.

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    SOSDF would like to thank all parents and carers who recently participated in our consultation process reviewing health and hospital services i...