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- Trial met primary endpoint of reduction in circulating levels of creatine kinase (CK), a biomarker associated with skeletal muscle damage, i...
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Dear Members of the Duchenne Community,
Today, Percheron Therapeutics, a public company registered in Australia and focused on developing treat...
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Australian Government bans genetic discrimination in life insurance: A big win for preventive health
Following the recommendations of a r...
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Philips after consultation with TGA is conducting an Urgent Product Defect Correction for the Philips BiPAP A40 Pro Ventilator, BiPAP A40 E...
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Philips after consultation with TGA is conducting an update to the Urgent Product Defect Alert of Philips BiPAP A30, BiPAP A30 EFL, BiPAP A...
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Pfizer gene therapy clinical trials commence in Australia! The first Australian boy has been screened as part of the Pfizer gene therapy clinica...
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The long awaited Federal Parliamentary Inquiry report into Approval Process for New Drugs and Novel Technologies has now been released. The reco...
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Save Our Sons Duchenne Foundation has just written a submission on behalf of our community to the Senate Standing Committee on Community Affairs...
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Save Our Sons Duchenne Foundation (SOSDF) thanks all Queensland families and young people who have participated in our recent consult...
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Are you on the Australian Neuromuscular Disease Registry (ANMDR)?
With an increasing number of pharmaceutical companies interested to run clinic...
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Sarepta Therapeutics has shared an update about themulti-ascending dose clinical trial of SRP-5051 for patients with Duchennemuscular dystrophy...
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