Advocacy

  • NDIS Consultation - the work continues:

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    SOSDF has compiled a major response to the Federal Parliamentary Standing Committee’s on the NDIS, Inquiry into the proposed use of Independent...

  • NDIS Virtual Town Hall

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    Save Our Sons Duchenne Foundation will welcome Shadow Minister for the National Disability Insurance Scheme (NDIS), the Hon Bill Shorten MP, an...

  • Have Your Say On NDIS

    by Save Our Sons
    You may be aware that the National Disability Insurance Scheme (NDIS) is currently undertaking a consultation process with NDIS part...

  • Commonwealth Inquiry into Independent Assessment For NDIS

    by Save Our Sons
    Dear members of the Duchenne and Becker community.   You may recall that just prior to Christmas we advised of a community consultat...

  • Parent Project Muscular Dystrophy

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    Most of you should be aware of the wonderful advocacy work undertaken by Parent Project Muscular Dystrophy (PPMD) in the United States. Over 20...

  • NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services.

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    SOSDF would like to thank all parents and carers who recently participated in our consultation process reviewing health and hospital services i...

  • Commonwealth Parliamentary Inquiry New Drugs and Novel Medical Technologies

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    Save Our Sons have lodged a comprehensive submission to this most important Parliamentary Inquiry. As the peak body representing the Duchenne a...

  • Introductory Video: Save Our Sons Duchenne Foundation Keynote Report into Duchenne and Becker in Australia

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    30 August 2020 Save Our Sons keynote Report into Duchenne and Becker in Australia will be formally launched in Canberra on Tuesday. Plea...