Advocacy

  • NDIS Consultation - the work continues:

    SOSDF has compiled a major response to the Federal Parliamentary Standing Committee’s on the NDIS, Inquiry into the proposed use of Independent...
  • NDIS Virtual Town Hall

    Save Our Sons Duchenne Foundation will welcome Shadow Minister for the National Disability Insurance Scheme (NDIS), the Hon Bill Shorten MP, an...
  • Have Your Say On NDIS

    You may be aware that the National Disability Insurance Scheme (NDIS) is currently undertaking a consultation process with NDIS part...
  • Commonwealth Inquiry into Independent Assessment For NDIS

    Dear members of the Duchenne and Becker community.   You may recall that just prior to Christmas we advised of a community consultat...
  • Parent Project Muscular Dystrophy

    Most of you should be aware of the wonderful advocacy work undertaken by Parent Project Muscular Dystrophy (PPMD) in the United States. Over 20...
  • NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services.

    SOSDF would like to thank all parents and carers who recently participated in our consultation process reviewing health and hospital services i...
  • Commonwealth Parliamentary Inquiry New Drugs and Novel Medical Technologies

    Save Our Sons have lodged a comprehensive submission to this most important Parliamentary Inquiry. As the peak body representing the Duchenne a...
  • Introductory Video: Save Our Sons Duchenne Foundation Keynote Report into Duchenne and Becker in Australia

    30 August 2020 Save Our Sons keynote Report into Duchenne and Becker in Australia will be formally launched in Canberra on Tuesday. Plea...