Advocacy 

“New Frontiers” Launched
The long awaited Federal Parliamentary Inquiry report into Approval Process for New Drugs and Novel Technologies has now been released....
GP Submission
Save Our Sons Duchenne Foundation has just written a submission on behalf of our community to the Senate Standing Committee...
Victorian Taxi Scheme (MPTP)
SOSDF has made a submission on behalf of the Duchenne and Becker community into the Victorian multi-purpose taxi program which...
NDIS Legislative Changes
As reported a couple of weeks ago, the Department of Social Services was undertaking a consultation on the proposed new...
SOSDF to capitalise on the Queensland Parliamentary Inquiry into Social Isolation and Loneliness
Save Our Sons Duchenne Foundation (SOSDF) thanks all Queensland families and young people who have participated in our recent consultation...
NDIS Consultation - the work continues:
SOSDF has compiled a major response to the Federal Parliamentary Standing Committee’s on the NDIS, Inquiry into the proposed use...
NDIS Virtual Town Hall
Save Our Sons Duchenne Foundation will welcome Shadow Minister for the National Disability Insurance Scheme (NDIS), the Hon Bill Shorten...
Have Your Say On NDIS
You may be aware that the National Disability Insurance Scheme (NDIS) is currently undertaking a consultation process with NDIS participants...
Commonwealth Inquiry into Independent Assessment For NDIS
Dear members of the Duchenne and Becker community.   You may recall that just prior to Christmas we advised of...
Parent Project Muscular Dystrophy
Most of you should be aware of the wonderful advocacy work undertaken by Parent Project Muscular Dystrophy (PPMD) in the...
NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services.
SOSDF would like to thank all parents and carers who recently participated in our consultation process reviewing health and hospital...
Commonwealth Parliamentary Inquiry New Drugs and Novel Medical Technologies
Save Our Sons have lodged a comprehensive submission to this most important Parliamentary Inquiry. As the peak body representing the...