Advocacy 

NDIS Consultation - the work continues:
SOSDF has compiled a major response to the Federal Parliamentary Standing Committee’s on the NDIS, Inquiry into the proposed use...
NDIS Virtual Town Hall
Save Our Sons Duchenne Foundation will welcome Shadow Minister for the National Disability Insurance Scheme (NDIS), the Hon Bill Shorten...
Have Your Say On NDIS
You may be aware that the National Disability Insurance Scheme (NDIS) is currently undertaking a consultation process with NDIS participants...
Commonwealth Inquiry into Independent Assessment For NDIS
Dear members of the Duchenne and Becker community.   You may recall that just prior to Christmas we advised of...
Parent Project Muscular Dystrophy
Most of you should be aware of the wonderful advocacy work undertaken by Parent Project Muscular Dystrophy (PPMD) in the...
NSW Parliamentary Inquiry – Rural, Regional and Remote Health and Hospital Services.
SOSDF would like to thank all parents and carers who recently participated in our consultation process reviewing health and hospital...
Commonwealth Parliamentary Inquiry New Drugs and Novel Medical Technologies
Save Our Sons have lodged a comprehensive submission to this most important Parliamentary Inquiry. As the peak body representing the...
Introductory Video: Save Our Sons Duchenne Foundation Keynote Report into Duchenne and Becker in Australia
30 August 2020 Save Our Sons keynote Report into Duchenne and Becker in Australia will be formally launched in Canberra...